Wednesday, December 28, 2011

Finally, the follow-up

Thank you all for your prayers and positive thoughts as we awaited the results of all of Lilly's tests.  It has been a challenge to even get an appointment with the doctor.  As it is, I had to reschedule a court date, so I will need to take a day from work anyway.  grr....but I digress.

Without further ado, the tests only showed one "unusual activity" period of 2 seconds in the whole 48 hours.  This could be nothing or it could be the beginning of a seizure disorder.  If she is going to have another seizure without a fever it will in all probability be in the next 6 months.  So we wait and see.  We have a new prescription for diazepam to be administered if she has a seizure longer than 5 minutes.  She will have it with her at all times.

I think that this was probably the best of all answers.  There were not many episodes that would indicate that she has epilepsy.  I definitely feel that it was worth my time and effort and her discomfort in having the testing done.  I trust the doctor implicitly, which I cannot say about the last neurologist.  I know from talking to him and to the other mom I met that he is aggressive in both testing and treatment.  So if he does not think that Lilly needs medication right now, I am confident in that decision.

Thank you again for all your kind thoughts and notes.  It has been a challenging time for my family as my Nanny is in her final stages of her life.  I am praying for a peaceful passage for her into the next life.
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